Demyelinated not Destroyed

Giving help and hope to those living with demyelinating diseases and their loved ones

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Sep 25 2008

Living with CIDP - One of Those Days

Published by kithlyara at 10:49 pm under My Journey Edit This

Have you ever had one of those days where you just feel off?  Not terribly bad but not terribly good, either.  Yup, I’m having one of those days.

For the most part, I will either have a good day or a bad day CIDP symptom wise.  Some days, my CIDP makes it hard for me to function well.  Others, I have the energy and coordination I need to do the things I not only need to do but enjoy doing.  Today was neither.

The tingling in my hands, arms, legs, and feet is at one of my all-time lows today.  I can’t even really feel tingling in my right hand.  The tingling in my legs is fairly faint, as is the tingling in my left hand.  I’ve got so used to having to deal with it that it feels a bit odd right now.  I haven’t tested whether or not I’ve gotten much in the way of feeling back yet.  I’ll have to do that soon.

While my tingling has decreased significantly today, so has my strength.  I’ve been feeling weak almost all day long.  Earlier, I had a fairly bad intention tremor in my right hand, something that isn’t normal at all.  Usually the only tremor I have is in my left hand.

I’m not really sure what to make of my symptoms today.  On the one hand, having less tingling is definitely a good thing.  On the other hand, getting weaker is bad.  To be honest, I’d rather keep the tingling but be stronger.  I can function with the tingling.  I can’t function when I feel like I’m going to collapse at any moment.

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