Demyelinated not Destroyed

It seems like it’s been ages since I’ve updated. For that, I apologize. Life just has a nasty habit of creeping up on me from time to time and demanding my attention.

I had a different blog post in mind that I wanted to make tonight, but I changed my mind when I decided to take a peek at my blog stats for September and October. I’m glad I did because I think what I now want to post about is much more important than my original idea.

In looking at my blog stats, I noticed how many people that have made their way to my humble little blog about demyelinating diseases from search engines like Google and AOL Search. I looked over the search terms that people are using to find their way to my blog and I was struck by how many people there are out there that looking for answers. My heart breaks for you all. I’m struggling back tears as I write this.

I spent five years of my life looking for answers to what was going on with me neurologically. It’s so hard to know that something is wrong with you but you don’t know what it is. You feel so powerless. I spent so much time wishing for some diagnosis, any diagnosis, because with a diagnosis, I could start treatment and work on getting better. It’s even worse when you know you have a demyelinating disease but you don’t know which one. You know there’s nerve and muscle damage that’s being done to your body but you’re powerless to stop it because you simply don’t know how.

There are those of you out there who are looking for a cure for the tingling, the muscle spasms, the fatigue… for the demyelination that’s being caused. I desperately wish I could give you one. Since I can’t, I will happily offer an ear to listen, a shoulder to cry on, a hug when you need it, and a virtual party for all of your successes and good days along the way.

While I know I don’t have all the answers to the questions that bring you here, I will do my best to answer anything I can and support you when you need it. I’m honored and humbled that you decided to check out my blog as you search for answers to the demyelinating diseases that bring you here. I sincerely hope that you stay awhile and share your stories and knowledge with me as I share them with you.

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