Demyelinated not Destroyed

I have often said that Demyelinated not Destroyed exists for its readers. This blog is less about me and more about giving information, support, and hope to the thousands of people living with demyelinating diseases and their friends and loved ones.

To that end, I am presenting two writing opportunities to the readers of Demyelinated not Destroyed.

• Guest bloggers - Demyelinated not Destroyed is looking for guest bloggers. Here’s a sample of some of the people I’m looking for:
  • Caregivers - People who are caring for a person with a demyelinating disease. Obviously, caregivers have different needs than patients. Since I am living with a demyelinating disease, I may not be the best person to speak to the needs of caregivers. I’ll try my best to do so but I believe it would be best to have a guest blogger handle this aspect of information and support for Demyelinated not Destroyed readers.
  • Patients - People living with demyelinating diseases, other than CIDP, if possible. While the progression of each patient living with a demyelinating disease will be different, there are symptoms and progressions that tend to be common within the different diseases. For example, CIDP usually affects the legs first and is equally problematic on both sides while MS tends to affect one side of the body over the other. Also, different demyelinating diseases have different treatments. I have a lot of experience with IVIg and steroids but none with beta interferons.
  • Charity Volunteers - There are many different charities out there for the various demyelinating diseases. It’s hard for me to keep up with them all, although I do try. Anyone that is active within one of these charities that is willing to blog about various activities, donor drives, and events is more than welcome to become a guest blogger here. I can’t financially support all the different charities but I can provide a place to get the message out.

The amount of pay will be determined when individual guest bloggers are assigned. The time requirement is minimal at one post a month. If you’d like to post more, that’d be fine, too. For more information, click on the “Writers & Stories Wanted” tab at the top of this page.

• It’s Always Darkest Before the Dawn - It’s Always Darkest Before the Dawn is a book of stories from patients and caregivers of people living with neurological disorders with a heavy emphasis on demyelinating diseases that I am presently compiling. This is to be a book of information, support, and hope. I want it to be the kind of book where people who are presently struggling without a diagnosis or have been recently diagnosed can read it and gain strength from it. The stories could be about personal struggles and triumphs, advice, or just whatever inspires you and keeps you going when times get tough. I’m looking for people who haven’t yet received a diagnosis, recently diagnosed and undergoing treatment, have been living with their diseases for awhile, and caregivers of those who fit into all of the other categories. Basically, everyone is qualified to submit their story for publication.

Proceeds of It’s Always Darkest Before the Dawn will go to help cover the costs of treatment and assisted living devices for those living with demyelinating diseases. Only those who can prove they have a financial need for the assistance will qualify.

Anyone who submits a story and has it published will be credited in the book and receive a free copy once it’s released. Since the proceeds are benefiting those in need, any money paid to contributors is money that won’t be going to help cover the costs of treatment for those who need it. Submission guidelines can be found by clicking on the “Writers & Stories Wanted” tab at the top of this page.

Please feel free to forward these writing opportunities along to those who you think might be interested!

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