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Archive for the 'Alternative Medicine' Category

Aug 12 2009

The Old Vaccine and Vaccinations Debate

vaccination needle

With the end of summer fast approaching, parents everywhere are beginning to turn their thoughts to the back to school madness that accompanies this time of year. Along with the purchase of school supplies and clothes, many parents take the time to make sure their children are up-to-date on their vaccinations. For those living in my home state of Texas, a new vaccination schedule has parents especially concerned with the subject.

Now, I know the debate over whether or not a child should receive vaccinations is often an emotionally charged, heated one. Parents on both sides tend to be rather passionate about their decision and rightfully so. That is why this post isn’t about which side is right and which side is wrong. This post, like many others on Demyelinated Not Destroyed, is about education.

I found out about the new vaccination schedule from an e-mail that was sent from my children’s school. I have to admit, I was pretty annoyed when I read it. I don’t mind that the school sent the e-mail. I’m sure many parents appreciated it. What I do mind is the total lack of any information concerning the fact that parents have the right to waive vaccinations for their children. It also failed to mention or give a link to a website that lists the various side effects the vaccines have.

I firmly believe that if someone is going to go to the trouble of listing a vaccination schedule, they need to include information on the potentially serious side effects or a link to a website that houses that information. Most parents sincerely want to do what they think is best for their child. How can they when they don’t have all of the facts before they make that decision? Thankfully the internet has made it easier for parents to research such things but the onus shouldn’t be on them to seek it out.

Vaccines can cause permanent damage to someone. The flu vaccine has been known to trigger Guillian-Barre Syndrome or GBS which can be downright deadly. Some of them aren’t even all that effective. There are reports that the varicella vaccine is only about 70-80% effective. My oldest child had it and still caught the chicken pox eight months later.

The flu vaccine is even worse at about 20%. Many people don’t realize that in order for the flu vaccine to be ready on time for flu season, doctors have to begin work on it the year before. The flu virus replicates rapidly. It can also evolve into different strains almost as fast. This means that doctors working on the flu vaccine have to basically guess which strains to focus on and how it’s going to evolve from one year to the next. Since guessing is far from an exact science, they often get it wrong.

It is true that the likelihood that a child will develop a serious side effect from a vaccine is slim. Still, parents need to sit down and seriously consider how they would feel if their child suffered one of the more debilitating side effects that vaccinations can cause.

Before my youngest began school last year, my husband and I did just that. While my oldest children received their vaccinations on time, our move to a new state and the worsening of my health made it difficult for us to stay current on my son’s. After doing as much research as I could on the vaccinations he still needed and my CIDP, we sat down and discussed the pros and cons of getting him caught up on his vaccinations and how we would feel if he experienced a serious side effect from them. Ultimately, we decided the risks outweighed the potential benefits at this moment in time. Should that change, such as if someone in the community developed measles or polio, we won’t hesitate to get him vaccinated. Once he’s old enough to understand all of the risks and benefits involved, we are going to let him make the decision on whether or not he wants to get vaccinated.

The decision we made may not be right for you and that’s perfectly okay. What’s important is that you do some research and a heck of a lot of soul searching before you make that decision. In the end, I am neither for nor against vaccinations. I simply want people to be educated about them before they get their child vaccinated.

Since vaccinations are all about creating an immunity to a virus or disease your body hasn’t encountered on its own, you might want to check out the book “Defending Your Health Naturally “. As the name implies, it’s an alternative medicine book that aims to boost your immune system, decrease pain, increase energy, provide ways to reduce stress, and detoxify. You can read more about it at the link below.


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Dec 05 2008

A ton of information posted

While stuck in the throes of insomnia last night, I finished creating several separate pages that are attached to the Demyelinated not Destroyed blog page. Here’s a hint of some of the information that’s now available at demyelinatednotdestroyed.today.com

  • Definitions – A list of commonly used words and abbreviations concerning demyelinating diseases. I made a supreme effort to ensure all definitions are worded in ways that the average person can understand.
  • List of Demyelinating Diseases – A list of diseases and disorders that can cause demyelination. Links to any blog posts explaining about any of the diseases are included in the list for easy reference. It is still possible to search for information about these diseases by clicking on “Demyelinating Diseases” under the Categories section.
  • Symptoms – A list of common and uncommon symptoms experienced by those living with demyelinating diseases. Links to any blog posts detailing information about the symptoms and ways to alleviate them are included for easy reference. As with the list of demyelinating diseases, all of this information can still be found by clicking on “Symptoms” under the Categories section.
  • Treatments – A list of common and uncommon treatments for demyelinating diseases. This list is broken down into western medicine and alternative medicine categories. Links to any blog posts giving information on the various treatment options are included. All of this information can still be found by clicking on “Treatments” or any of its sub-categories under the Categories section.

If anyone knows of anything that needs to be included on these new pages or has recommendations on other pages I should create, please let me know.

I also updated my blogroll yesterday. There are links to three new blogs, four new charities, and one new store. I added the following categories: “Support Communities” and “Websites”. “Support Communities” presently has four different links, each one going to a messageboard where people living with, or who have loved ones living with, demyelinating diseases of various kinds can find support. “Websites” has one link and is for links to any websites I want to include for various reasons but doesn’t fit in any of the other categories.

I’m presently debating creating a separate website to house all of this information along with a messageboard. The messageboard would be for additional support of people having to deal with a demyelinating disease in one way or another. It would also make it easier for me to interact with my readers. The blog would still be hosted by Today.com. Any new entries would be accessed by an RSS reader on the website or directly at Today.com. What do you think? Do you think a separate website would be beneficial? Or should I just stick with the present format?

On a side note, anyone in need of extra cash (who isn’t right now?) should sign up for a blog on Today.com. You get paid per post and for the amount of page views your blog receives every month. It’s also very easy to use. If you’re interested, you can find out more information or sign up for your very own Today.com blog here .


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Oct 12 2008

Keeping a Medical Journal

One of the greatest tools a person with a demyelinating disease can use when it comes to treating their disease is keeping a medical journal. It’s simple and quick to do, yet the impact it can have on how your demyelinating disease is treated is astounding.

What does it do?

Keeping a medical journal allows you to track your symptoms.  There are two approaches to keeping a medical journal.  You can:

  1. Track just your symptoms and how they change on a daily basis
  2. Track all of the following:
    • Amount of food eaten, what kind, and when
    • Amount of water drunk
    • Activities (grocery shopping, doctor’s appointment, gardening, etc… )
    • Amount of exercise
    • Amount of sleep
    • Medications and supplements taken
    • Severity of symptoms
    • Any observations on what made your symptoms immediately worse, better, etc…

Obviously the second choice, while being a little bit more time consuming, would give you and your doctor the best overall view of your health, what makes the symptoms for your demyelinating disease worse, and what makes them better.

Why is it important?

The biggest problem that faces people with demyelinating diseases is how often their symptoms can change.  For some people, their symptoms will get noticeably better or noticeably worse fairly quickly.  For others, the changes will happen gradually over time.  Gradual changes can be especially difficult to deal with when you have a demyelinating disease.  Because you get steadily worse over a long period of time, it can be extremely difficult to pinpoint when your symptoms began to worsen.

Also, most people with demyelinating diseases have a lot of doctor appointments.  If you try to rely on solely on your memory when your doctor asks for details about your symptoms and how you’ve been feeling since the last appointment, you can forget to tell them something important.  If your doctor doesn’t have all of the information on your overall health, they can’t come up with the best plan of care for you and your demyelinating disease.  Even the smallest details can have a large impact on your treatment plan.

Things to keep in mind

Keeping a medical journal doesn’t have to be a time consuming experience.  Take 15 minutes, each day, before you go to bed to jot down the things you’ve done that day, rate how your symptoms are, and make note of any significant changes or odd feelings.

When you go to your doctor appointments, bring the journal with you.  Better yet, make copies to give to your doctor of the medical journal entries you’ve made since your last appointment.  Those copies can then become part of your medical record.

My experience

I try to chronicle any significant changes in my symptoms on my computer.  I’ve found it extremely helpful for me to read over past entries in order to get a gauge of how my CIDP and various CIDP related symptoms are doing.  Admittedly, I could get much better about making my journal entries every day.

As a special note, I decided to file “Keeping a Medical Journal” in the Treatment category because it can impact how your doctor treats you and your demyelinating disease.

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